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Exhibition aims to raise awareness of spinal muscular atrophy

2022-12-05
Focus Taiwan
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Guatemalan Ambassador Oscar Adolfo Padilla Lam (back row, center left) and guests pose for group photo at the opening of the exhibition in Taipei Saturday. Photo courtesy of Central America Trade Office
Guatemalan Ambassador Oscar Adolfo Padilla Lam (back row, center left) and guests pose for group photo at the opening of the exhibition in Taipei Saturday. Photo courtesy of Central America Trade Office

Taipei, Dec. 4 (CNA) An exhibition opened in Taipei on Saturday aimed at raising awareness of the motor neuron disease spinal muscular atrophy (SMA), with the organizer calling on the government to expand the scope of free drug coverage to some 420 patients in Taiwan.

The exhibition, called "Include," seeks to present the struggles faced by SMA patients through visual art forms and advocate for greater government support to "leave no one behind," according to the Become the Miracle Association.

SMA is a rare neuromuscular disorder that results in weakness and muscle wasting, eventually causing paralysis and death.

It is different from the better known amyotrophic lateral sclerosis, or ALS, in that it primarily affects infants and children and is a major genetic cause of infant mortality.

Speaking at the opening of the exhibition, association chairwoman Lee Yi-chieh (李怡潔) said a huge majority of the SMA patients in Taiwan remain unable to obtain free treatments due to strict requirements.

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